Progress made in rescue med 'epilepsy' bill fight

While my bill, LD 1491 An Act To Allow Trained, Nonmedical Employees in Schools To Administer Emergency Medications, was voted down today in committee, I believe we've achieved several things.

Together with the Epilepsy Foundation, we've elevated the issue with the public and at the State House. We stood up for the families that have children with epilepsy. We fought for a consistent policy across the state in saving a child's life over unneeded and often confusing red tape.

Thank you to the Education Committee who, because of our work bringing the bill forward, will be sending a letter of memorandum to the Department of Education to update the training and education manual for school nurses that hasn't been updated for 11 years! It will include language on delegating the responsibility of emergency rescue medications and specifically in reference to epileptic seizures.

They will also request the department send a letter to all school nurses and school districts clarifying existing laws and policies on the role of delegating to a non-medical staffer. That information will be added to the school nursing summer training program.

Also requested was information placed on the DOE website detailing parents rights when it comes to forming their children's individual school health plan. A report back to the Legislature will be required to ensure these items were accomplished.

​A law wasn't passed, but we have progress. Thank to the families whose stories helped move the needle forward. Your courage and advocacy on behalf of your kids is admirable and inspiring. I hope this helps.